Over the last couple weeks I have started pulmonary rehab. I go two days a week and exercise lightly with oxygen. I physically can do much more and would like to but my lungs cant keep up. This may help them perform a little better but will do nothing to heal them. Lung tissue is gone once it is damaged unlike many organs of the body. I am also cutting back on the prednisone slowly. As long as it is tolerated. I just started this. Also I have contacted Duke and told them to go ahead and send my records and test results to both Pittsburgh and Cleveland. These are the two places they recommended that I should try and they may actually do the transplant of the lungs and liver at the same time. I continue to pray that this is what I need to do and I feel ok about going. I feel led to pursue this somewhere else. Meanwhile, my pulmonary doctor here in Greenville is wanting me to see a liver specialist to follow up with me to see the degree of damage to my liver the treatments caused. Duke only said that there is enough to have to transplant it too and that it has been there for years and did not appear to me getting worse. I do want to know how extensive it is, if it may be able to heal itself, and what changes I need to make to help the situation.
So no big moves for now. Just continue to do the rehab and cut back on the prednisone. I should know more in the future from the liver doctor and get some feedback from up north at those two clinics. Do you think its safe for a rebel to go under the knife in yankee territory? Ha ha. Ya know I hear they don't have sweet tea up there. Out of the surgery, recovery and no sweet tea, I think the deprivation of that cool refreshing beverage may just be the worst part. Stay tuned for more updates over the next few weeks.
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